Shy-Drager/MSA Support Group

  Join the Multiple System Atrophy/Shydrager Mailing List

 

 

   Multiple System Atrophy News

Click figure to go to SDS/MSA Website

MSA News now available on the web

Go to
http://health.groups.yahoo.com/group/msa-news/

February 2003

1. SUPPORT GROUP NEWS
    a. View the Latest News from Shy-Drager.com
        i. Annual Russell Wood Lecture - Denver, CO - April 2003
        ii. SDS/MSA Support Group Regional Meeting - Houston, TX - May 2003

    b. NAF Annual Membership Meeting - Atlanta, GA - March 2003

2. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. NIH FUNDED RESEARCH PROJECTS
        i. Autonomic Disorders Program Project
        ii. Molecular Substrates of Aging and Neuron Death

3. ODDS AND ENDS
    a. Charmayne's MSA/Shy-Drager website has moved.

_________________________________________________

January 2003

Table of Contents

1. SUPPORT GROUP NEWS & EVENTS
    a. View the Latest News from Shy-Drager.com
    b. Annual Ataxia Medical Meeting - February 8, 2003 - Rockville, MD

2. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. World Leaders in MSA Research to meet in Austria - February 2003   
    b. NEW NIH FUNDED RESEARCH PROJECT: Bionic Baroreflex System for Blood Pressure Control

3. CLINICAL STUDIES RECRUITING PATIENTS WITH AUTONOMIC DISORDERS
    a. Positron Emission Tomographic (PET) Scanning of Sympathetic Innervation and Function in Patients with Neurocardiologic Disorders b. Blood Sampling for Neurochemical and Genetic Testing

4. ODDS AND ENDS
    a. VIDEO: "Bringing attention to the rare disease Ataxia"

_________________________________________________

December 2002

1. SUPPORT GROUP NEWS
    a. View the Latest News at Shy-Drager.com
    b. New French Language Online Support Group

2. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. Dr. Michel Levesque's Research
    b. MSA Research Presented at the 7th International Congress of Parkinson's Disease and Movement Disorders

3. ODDS AND ENDS
    a. Video: The Stem Cell Debate

November 2002

1. SUPPORT GROUP NEWS
    a. Boston Meeting Audio Tapes Now Available

2. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. Researchers Meet to Test MSA Rating Scale

3. CLINICAL TRIALS RECRUITING MSA PATIENTS
    a. Intravenous Immunoglobulin Therapy In Patients With Cerebellar Degeneration

4. ODDS AND ENDS
    a. MSA Researcher inducted to the American Academy of Arts and Sciences

 

October 2002

Table of Contents

1. SUPPORT GROUP EVENTS
    a. SDS/MSA Regional Support Group Meeting A Huge Success!
    b. SPECIAL REPORT: Synopsis of the Chicago SDS/MSA Meeting
        by Zac Carter

2. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. European Multiple System Atrophy (EMSA-SG) Study Group Program

3. CLINICAL TRIALS RECRUITING MSA PATIENTS
    a. Drug Study - Hytrin (Terazosin)
    b. Drug Study - Midodrine Hydrochloride (ProAmatine)

4. ODDS AND ENDS
    a. Dr. Cliff Shults Appears on MDTV

September 2002

Table of Contents
1. SUPPORT GROUP EVENTS
    a. SDS/MSA Regional Conference: Chicago IL - September 13 - 15, 2002 >>
    b. All California Ataxia Research Meeting: Fresno, CA - November 3, 2002 >>

2. MULTIPLE SYSTEM ATROPHY IN THE MEDIA
    a. "About Health" TV Interview on MSA featuring Tony Swartz-Lloyd >>

3. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. Vanderbilt team nets $9.5 million to study autonomic nervous system >>

4. ODDS AND ENDS
    a. Local MSA Support Groups >>

August 2002

1. SUPPORT GROUP EVENTS
    a. SDS/MSA Regional Conference: Chicago IL - September 13 - 15, 2002 >>

2. MULTIPLE SYSTEM ATROPHY IN THE MEDIA
    a. "About Health" TV Interview on MSA - Rob & Carol Langer  >>
    b. MSA Video Documentary Needs Your Photo- Deadline August 31, 2002 >>

3. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
    a. Orthostatic Hypotension Drug Study >>

4. ODDS AND ENDS
    a. Sarah Matheson Trust for Multiple System Atrophy New Website >>

June 2002

1. SUPPORT GROUP EVENTS
    a. MSA Conference: Denver CO - July 26 - 28, 2002
    b. MSA Conference: Chicago IL - September 2002
    c. NDRF Conference: Washington DC - July 18 - 20, 2002

2. MSA RESEARCH NEWS
    a. MSA Research Study Announcement
    b. MSA Research Study Questionnaire
    c. MSA Mouse Model Discovered!   

3. ODDS AND ENDS
    a. MSA NEWS Now Published Online
    b. North American Members Reach Out to Those in Australia and Europe

May 2002

  1. ARTICLE: Multiple System Atrophy-Autonomic Disorder Appears in Many Guises
  2. VIDEOS: NIH Video Webcasts on Neurodegeneration Research
  3. ARTICLE: Parkinson-like Disorders
  4. SPECIAL REPORTS from the 2002 Shy-Drager/MSA Annual Conference

March 2002

1. MSA Annual Patient Conference Rescheduled in Boston May 3 - 5, 2002
2. MSA Donations
3. Announcing the European Multiple System Atrophy Study Group
4. Boston Globe article on MSA
5. New fact sheet explaining Olivopontocerebellar atrophy (OPCA)
6. News from the Center for Neurodegenerative Disease Research
7. NIH Funded Studies involving Alpha-Synuclein (2002)

December 2001

1. Shy-Drager/MSA Support Group Annual Patient/Family Conference Postponed
2. Shy-Drager/MSA Support Group Non-Profit Status Confirmed
3. North American MSA Study Group Submits Proposal to NIH
4. Protein Protects Against Degeneration of Neurons in Fruit Flies
5. A Review of Online Articles on MSA/Shy-Drager
6. NIH Funded Studies of Multiple System Atrophy (2001)

February 1, 2001

Table of Contents
1. Iron Metabolism and MSA
2. Oxidative Stress and MSA
3. Dr. Sid Gilman to Speak at National Ataxia Foundation Annual Conference
4. Research Articles by Dr. Sid Gilman
5. Curing Parkinson's Disease in Our Lifetime