Multiple System Atrophy News
Click figure to go to SDS/MSA Website Table of Contents 2. MULTIPLE SYSTEM ATROPHY IN THE MEDIA 3. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS 4. ODDS AND ENDS
______________________________________________________________________ a. SDS/MSA Regional Conference: Chicago IL - September 13 -
15, 2002 Location: The Chicago O'Hare Hilton Hotel Accessibility: Walking (Tunnel) from Baggage claim or via
Hilton courtesy shuttle outside baggage claim area. Hotel reservation Instructions: Call 877-865-5322 Meal and Head Count Reservations: I MUST have an accurate count of those attendees who will be
joining us for any of the following meals and snacks! Friday, Sept 13th: registration and Social Hour. Please send me an e-mail with that information as soon as
possible. Don.Summers@shy-drager.com The Support Group Must Pay For The Food Even If There is No
One There To Eat It!!!! For those without e-mail access, please call the support
group toll free number and leave your information on the answering machine!
(866-737-4999) Our Host for this meeting is Dr. Janice L. Gilden, M.D. of
Finch University Health Sciences, The Chicago Medical School. Other physicians
making presentations will be: Dr. Tom Chelimsky M.D of University hospitals of
Cleveland and Case Western Reserve University, Cleveland, Ohio; Dr. David
Robertson M.D of Vanderbilt University Medical Center, Nashville, Tennessee. Dr
Gilden also plans to have a Movement Disorder Specialist from the Chicago area
join us. I will post his name as soon as I receive it. TENTATIVE CONFERENCE SCHEDULE Friday, Sept. 13th Saturday, Sept. 14th Sunday Sept. 15th Please plan to attend the business meeting on Sunday morning.
There are some important things that need to be discussed there. Please contact me if you have any questions or problems. Don Summers, President The SDS/MSA Support Group is a Non Profit corporation devoted
to reaching and assisting the Patients, Caregivers, Family Members and
Physicians who are dealing with Shy-Drager Syndrome (Also known as Multiple
System Atrophy). Our mission is to educate and support these people by
establishing a never-ending circle of information among all involved. This has
become known as the " Circle of Hope"! I can be reached at the toll free number
866-737-4999 or via e-mail at Don.Summers@shy-drager.com The SDS/MSA Support
Group also sponsors the e-mail list, shydrager@yahoogroups.com . Your financial
assistance is always needed and greatly appreciated! Contributions may be mailed
to: The SDS/MSA Support Group 2004 Howard Lane Austin TX 78728 All contributions
will be acknowledged and are tax deductible. b. All California Ataxia Research Meeting: Fresno, CA - November 3, 2002 Note: The National Ataxia Foundation
1. SUPPORT GROUP EVENTS
a. SDS/MSA Regional Conference: Chicago IL - September 13 -
15, 2002 >>
b. All California Ataxia Research Meeting: Fresno, CA -
November 3, 2002 >>
a. "About Health" TV Interview on MSA featuring Tony
Swartz-Lloyd >>
a. Vanderbilt team nets $9.5 million to study autonomic
nervous system >>
a. Local MSA Support Groups >>
The Chicago SDS/MSA Support Group meeting arrangements have been completed.
Dates: Friday, Sept.13 through Sunday Sept. 15th
Room rates: $90.00 plus tax per night
The group code is SDS/MSA. The code (including the "slash") must be used when
you call!
Saturday, Sept. 14th: Breakfast, Lunch And Break-Time Snacks.
Sunday, Sept. 15th: Breakfast
6:00 P.M. to 9:00 P.M. Registration, Social Hour And Get Acquainted time.
7:30 - 8:30 A.M. Registration
7:45 - 8:45 A.M. Breakfast Buffet
9:00 A.M. Physician Presentations
10:30 - 11:00 A.M. Break and Snacks
11:00 A.M. Physician Presentations Continue
12:30 - 1:30 P.M. Lunch
1:30 P.M. Roundtable Discussion, Open Forum With Physicians
2:45 - 3:15 P.M. Break and Snacks
3:15 - 4:30 P.M. Patient, Caregiver and Family Member Breakout Sessions
8:30 - 9:30 A.M. Breakfast Buffet
9:30 - 12:00 Noon Support Group Business Meeting And Wrap Up Session
SDS/MSA Support Group
Of particular interest at this meeting is a presentation on the drug Histone Deacetylase (HDAC) which arrested neurodegeneration in a fruit fly with Huntington's Disease.
For more information please see: http://home.pacbell.net/fernande/meeting.htm
2. MULTIPLE SYSTEM ATROPHY IN THE MEDIA
a. "About Health" TV Interview on MSA featuring Tony Swartz-Lloyd
http://www.abouthealth.com/ahtv_details.cfm?Topic_Title=38
About Health with Jeanne Blake
Living with Multiple System Atrophy
A recent About Health program featured discussion about a disease that until recently received little attention. It's called Multiple System Atrophy, or MSA. The disease involves multiple systems within the nervous system including those that involve movement, balance and coordination.
On this edition of About Health we continue our discussion of MSA with Tony Schwartz Lloyd. Tony was diagnosed two years ago. He is known to many in Boston as the former Senior Vice President of Communications and Public Affairs at Boston's Beth Israel Deaconess Hospital.
View the full transcript here:
http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=16See the "About Health" website here:
http://www.abouthealth.com/healthtv.cfm3. MULTIPLE SYSTEM ATROPHY RESEARCH NEWS
a. Vanderbilt team nets $9.5 million to study autonomic nervous system
A group of VUMC investigators has received a $9.5 million, five-year Program
Project Grant (PPG) from the National Heart, Lung, and Blood Institute to study
disorders of the autonomic nervous system. The grant is a renewal and expansion
of a PPG that was first awarded in 1997.
View the full article here:
http://www.mc.Vanderbilt.Edu/reporter/index.html?ID=21824. ODDS & ENDS
a. Local MSA Support Groups
A list of MSA/Shy-Drager support group leaders and local contacts is maintained
at
If you are interested in being a support group leader or local contact send a note to MSA-Contacts-owner@yahoogroups.com
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To subscribe to the MSA Online Support Group
Please visit http://groups.yahoo.com/group/shydrager
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