Vanderbilt Autonomic Dysfunction Center


Sleep has been a big issue for me. When I first got sick, I would probably sleep on average 14-15 hours a day. I would wake up and go to class, come home and pass out from exhaustion for a few hours and then eat dinner, do some homework and crash again. More recently, I have had the opposite problem—sleep is now illusive. I am usually exhausted by the time I get in bed, but often find it hard to go to sleep. My legs will ache and I can never seem to get the temperature right.


For me, sleep is one of the things that has the strongest influence on my symptoms. A recent study at Vanderbilt showed that there was a link between sleep problems and quality of life and that is certainly true for me. If I don’t get enough sleep, I will almost certainly get a headache, low grade fever, bad muscle aches, etc. During periods of time when I do this consistently, I have found that I set back months worth of progress I have made in my illness control. Protect your sleep time. This is my number one rule.


My Strategies for Sleep

This page was last updated March 9, 2016 and is maintained by