Speaker:  Yes sir.  Well, everyone can read what's there.

Audience 1:  Yeah.

Speaker:  Pardon me?

Moderator:  Anything more?

Speaker:  It's too far.

Moderator:  As I went around I told everybody, "Come up. Introduce us to your person and tell us the story.  of how they managed their care."

Speaker: Well, I'm not just going to repeat what’s there.  We looked at this and decided that Joshua was a child that had multiple health problems.  He had available to him only limited health insurance coverage and probably because of that, he was going to have access to only limited comprehensive care choices.  He has asthma, seizures, has ADHD, has motor development delay. 

This issue on his health insurance coverage is, to repeat what's there, it says is " The head of household was an independent architect, pays for basic healthcare coverage through his trade association and by several forms of supplemental coverage through at broker."

So like I said, we assume that probably wasn't the best health insurance coverage.  We don't know what the supplemental plans do.  Unlike some of us who might be in a very good plan with a lot of support built within the plan, we believe that this person and his family is primarily going to have to fill out into the world on their own and deal with these problems. 

So, we said his key issues were:  He needs a medical home, some place where you can get coordination and care.  They need to be able to find some places where there might be assistance available.  That might be financial assistance, that might be educational assistance dealing with one more of these conditions.

Part of that, and we think the key part of that, is needing to have an access to social networks, places where you have people who are either or inflicted by one or more of these, family members and where there is an exchange of information.  Clearly, medication management is going to be a big key in this instance and because the likelihood is that there isn't going to be a coordinated care here to the system. 

We believe some information and ability to prepare, maintain some sort of personal health record for this child is going to be critical as he goes from place to place and gets care from a variety of sources.  In talking about the websites and everything, our thought was that this person has a series of complex issues and maybe with the exception of asthma, aren't ones that hundreds of thousands of people have

So that considering the likelihood that AHCA or any other agency is going to be faced with limited resources in the years ahead, that we felt that it probably wasn't in our ability to deal in depth with many of the specific problems that this child has. 

So in that vain note, we thought that perhaps the one thing that would make or be the best feature from this family's perspective that AHCA might have on this website is some sort of a comprehensive search capability. It's a website where this family can find out information about some of these conditions that the child has, perhaps ways to find providers who could or do deal with these problems and that sort of things, rather than have the information built into the AHCA website..

Ways where this person, these people could get beyond the AHCA website.  Having places where, perhaps epilepsy association as example, they are going to have loads and pages of hundreds of pieces of information about this.  And that is something that AHCA could never hope to maintain on its own. So we thought that that's probably the most important thing that could be included as a part of the AHCA website. 

However, we do think though that there should be some information in there related to basic health promotion.  I mean this child, among other things, suffers from asthma which that are not there.  There are many children who do that.  Things like asthma, IV's, perhaps obesity, some of those kind of things there might need to be some information where you could drill down in and get general questions and ideas about those kinds of conditions.

Also, and to some respect, this is really the first one that, how can this family find the kinds of specialized facilities and services that this child would need. 

So once again, there would need to be some way that you could tap in, go beyond, be it Medicaid, be it CMS, the other kinds of things that might be available for this child.  Certainly drug calls are obviously there, that's where it's built or explained in, perhaps an enhanced drug price capability that we have now, MyCoreRx that they could be expanded and perhaps enhanced to be of some help. 

And certainly, what's there now would certainly be the basic thereon because again, clearly, with the limited insurance coverage these people are probably going to be faced with paying for much of their drug costs on their own.

Anything that could enhance that feature and make it more useful for these people.  And then finally, again, because we felt that it's probably going to be incumbent upon this family to keep the kind of records are needed as this child goes from provider to provider. 

Perhaps something on the importance of and even some basic tips on how to create some kind of a personal health record that they could maintain for this child. And they can use this so they get the right kind of care as they go from place to place so they are not faced with drug interactions and those sorts of things. 

But then again, most of us would have that addressed, assuming we have a good medical home.  So those are the things that we think ought to be included in some sort of enhanced AHCA website that we believe would be most useful to someone that has these sort of multiple specialized problems. Thank you.

[Applause]