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Talk Show Host with Immobility | Foster Child with Special Needs | Aging Professional with Dementia
Healthy 'Boomer' with Colon Cancer
| Sedentary Diabetic | Asthmatic High School Senior with Brain Cancer
Post Reports Discussion


Scenario Challenge (Personas) Discussion

TRANSCRIPTION

Speaker 1: So in anybody's scenarios, at any of these scenarios that you've heard, anything jumped out as wow, that's phenomenal or that's totally way off the mark? Or flatline?

[Laughter]

Mark: The thing that kind of runs through all of it really is information. I think everybody has said that we want to provide the information for each person to make an educated decision. One of the difficulties is, yes there is a wide variation in age, capability. Maria was very good on the internet. Somebody else probably never heard of the internet. And providing the information to make one's decision is not easy.

Speaker 1: Mark, you want to talk a little bit about the challenges that your group had with Joshua Bedford. The five-year old with the very complex host of disease states.

Mark: What Josh taught us, he was a kid that really...the problem is there aren't any people who want to take care of a kid that complex. The choice doesn't mean much if there's nobody around who wants to.... there is no supply for the demand.

01:09

And what we I think learned from his case was that the state has a finite capacity of what it should and it should not do. And one of the tough things I think your committee's going to be forced with is that there is no single thing that was presented which isn't a great idea. But there are a lot of things that can be done better somewhere else. So there will not be one model of its site to do this. Like the cancer treatment, I think is the same way. So we were struck with a lot of these cases.

As I was hearing them about how much AHCA can't stand alone and how much Scott had developed the right relationship and what it does do well. So rather than positing AHCA, nobody's claiming the truth. As a competitor to a guru something, just say, "If I'm getting Google or Yahoo and I'm in Florida - and in Florida looking for healthcare. And what AHCA is the very best at shows up at the top of the list?"

And so I think we saw boundaries with circle in these cases. And I was really stuck with the brain tumor case as well about just as where you do the hand-off? How did you do the hand-off? Did he start with the statement? Did he start somewhere else? But it's an inner play.

02:21

Speaker 2: I'm struck by this mention. Two things struck me, one is that all healthcare is local at some level - and frankly no matter how much information is on the web site - the kinds information that I needed, that I could bring to each one of these cases if they were in my community, is not something I get off a the website. It's something I have for 35 years old living there. Not the least of which is that it's Beach County not Brownward County.

[Laughter]

02:58

Speaker 2: Already adopted children are no longer called foster children. In Boca Raton, from Sylvester Cancer Center has a place. I guess part of what I want to say is that from what I know about the healthcare system, without ever going to the computer, I could help everyone of this people based on what I know if they were in my community.

And so part of what you have to know is what you don't know and what's not there and identify the right resources for alternative source of information whether that's your newspapering, your community provider, your family, your clergy men, the support group of people who have similar issues. I guess to me that was the piece that came across that no matter how perfect the information system you may have used, there's going to be the stuff that always somebody that's been there can answer the question.

[Inaudible]

Speaker 1: Search, filter, word of mouth. Question? You and then you and then you.

[Inaudible]

Speaker 3 : During our discussion, Dr. Wesley guides us in discussion about when is it too much information? And in relation to Carlos who had a very rare kind of cancer in his colon. He will want to go out on a website and look at various kinds of journals and start researching the type of cancer and he's going...


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