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Team B :: Personal Health
Andrew Agwunobi | Christine Kaptur | Karen van Caulil | Jimmy Card | Meade Grigg | Doc Kokol

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Report Out Wall

TRANSCRIPTION
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[Applause]
Moderator: Next team.
Speaker: I guess I'll go since some of you pointed at me here. We were in Group B which was personal health. I’m a little confused by the first group's topic but there’s a lot of overlap with it. Christine, I think is here, the doc and me.
And really, we picked up on where we had left off, conversation-wise as a group about what does the consumer want and need, things that we don’t have already on the AHCA website, some things we had started to do.
But how are we going to get consumers to the website? And this isn't in any particular order, but one of the things that we talked about is to develop a series of questions for consumers that become very customized as they respond in a particular way to signs and symptoms or diseases that they maybe been already diagnosed with.
And at the end of answering all these questions, the software generates their profile and a plan or a series of recommendations about the types of things they need to look into whether that’s diet, nutrition, exercise or maybe make an appointment with a mental health counselor or make an appointment with your physician. |
| 01:30 |
And there are a couple of programs that are already in place, so we wouldn't need to start from scratch. There's a really good example in the state and it’s used for young children. It’s called ‘Whole Child’ of the Lawton Chiles Foundation. Ed Feaver has developed this and it’s about 40 questions the parent answers about signs and symptoms their children has geared towards age 0-5.
And after they finish answering these questions, there comes values as well. Based on what you responded, you should look into doing this for that for your child. And you can stop right now and print out a care plan or we can send your information on to a Whole Child coordinator and they can help you navigate this complicated system. |
| 02:12 |
So we liked that idea and thought and we want to talk about that. But first we really need to have focus groups with consumers. Is this something that we need? What would be the areas that we would need to focus on? So, we talked about a lot of different ways to do profiling and whether you could store it on a website or you would just do it one time, print it and keep it, and the implications of confidentiality.
We talked a lot about defining what success looks like with us. We really need to have focus groups and we were looking at that the YouTube stuff and everything there. Bunch of us are probably saying, “It worked for me and I am a high-end. I'm in that group that’s going to be using healthcare a lot."
I'm not so sure that 17-year-olds really are needing it as much. So, we’re going to have to have the age-stratifying focus groups. We want to be able to have some kind of pop-up survey so that we can ask for feedback and monitor traffic on the website. But we have to be open to redesigning based on what’s going on. |
| 03:18 |
We've been up yesterday, and a couple of different groups really think it’s important that the website also provide educational information on a front-end. So that AHCA's new website - new name Florida Health or whatever Health in Floride, whatever we’re going to call this on the front-end - you come in and you get information about the disease and condition. Maybe you’re linking to a site that already is great and you’ve subcontracted it out to them.
It gives information on health and wellness, and nutrition, and exercise, treatment options for diseases and conditions. We talked some yesterday as a group about resources as well. And maybe even this new iteration of the website has a lot of this.
But this is where the consumer could break into the quality information, the pharmacy information, things that we've worked so hard on for so many months into years now, but also local information for health and nutrition, health clubs, support groups, cancer support groups, diabetes support groups. I really think that’s important. |
| 04:25 |
Another thing that came up with patient empowerment and being able to develop questions for patients. If you’ll ask their doctors, if you have these signs and symptoms, if you already know you have this disease, there are a lot of websites and resources out there that have done that. But to link to those so that they can bring those with them and be focused on them and get answers to their questions.
We were a little queasy about linking to some of the existing virtual things: YouTube or what have you. I really would urge AHCA and this group to create a safe virtual community of your very own that was interactive and could be a route linked to different resources. |
| 05:11 |
We talked about already about the creation of the care plans. Something to talk about - having the ability to link to a live person at some point. I don’t know how we would do that but if you’re not getting the answers that you want around this disease or condition and you’re in this part of the state, we want to give an option to go to anybody to a 211. We don’t know but we had a question mark about how we would do that and I thought that might be worth consideration.
And then to also have on the website and I thought that they will really like this idea ot have some tools: to be able to put your weight, height, your age and know your BMI and what the implications of that are, calorie counters. There are a lot of those that are already out on the website.
So I guess kind of looking back at it, we’re saying to be a portal to the front-end, you can get into different resources that are out there to help you maintain your health or help you enter into the system, but also to be able to access compariso,n quality and price information, pharmacy information, kind of as a resource next step.
So, one of the directions we took. --do you have anything to add or doc? |
| 06:25 |
Tom Lloyd: So the difference, at least in my impression, when I wrote the things on the board was... One was customization of the other team’s role was. How do I customize and present that to the person who’s sitting at the terminal the data that AHCA has [inaudible]?
Speaker: This is different.
Tom Lloyd: I want to go here to become healthy.
Speaker: Or I have maybe sciatica and I don’t—the example from yesterday. I don’t know what that means and I’m not exactly sure in what’s going on in my community. Maybe I eleveate my leg at night and that would do the trick or whatever.
Tom Lloyd: So, but it is more about a tool to help someone manage their own personal health.
Speaker: Yes, that was the tactic that we took. But also, when it gets to a point where they need to know about providers and about the provider that can best manage diabetes, has the best outcomes, that that would get them seamless into that aspect of the website. |
| 07:29 |
Tom Lloyd: And was there anything that your team talked about that you said , "That is uniquely AHCA." I mean, a lot of things on your records were things that other people are doing. I think the value of maybe AHCA brings to it, you would definitely would need to say, "This is, you know, AHCA certified."
Speaker: Yes. And that is exactly - we trust it, secure, that would be the unique thing. It’s AHCA. We don’t have any stake in the game here with the ads that pop-up and drug companies or whatever. This is a trusted source.
Male Speaker 2: I think also that the process was already underway. So what it needs then is some inertia at the AHCA website. It doesn't have this data. It doesn't give you these various disabilities. Part of what this is how you can get people there.
You don’t just want them to come there that one time that they have an incident that they're looking at. We were really trying to come up with some 'hooks' that would bring people back on the regular basis. They became comfortable with this idea of surfing and understood that when I need it, there’s other information that’s available as well.
Moderator: Yes? |
| 08:45 |
Speaker: I think one of the things that’s interesting and maybe it’s like hearing all of this all starting to come together. I hate to keep going back to the report that was released but Florida did look bad because of access to care which is tied into insurance. And I think a lot of people look for what we’ve got and we've got the expert in the room in terms of how many people are uninsured.
And I think that you know a lot of people who don’t get coverage through your employer or you might be eligible for Medicaid and I find it interesting that through a lot of this, we haven’t talked about those tools for a person to find out-- |
| 09:30 |
Female Participant 1: There need to be other resources for sure: what free clinics do you have in your area?
Speaker: Free clinics. What are the eligibility for Medicaid? The kit care and then tying that into if you're going to buy individual coverage, hear the plans that offer that, hear their ratings. And then tying-in the lab with—maybe somebody does have right ratings, they could look up that information and weigh back cost versus quality judgment. Did that come up with...? |
| 10:06 |
Female Participant 1: It did, with the series of the questions, for sure. Do you have a usual source of care? No, then that it would get you to a list. Do you have health insurance or Medicaid? If no, here are your options to kind of take you to either other links or lists of service that were created.
So we did talk about coverage plans that they could access to college who have a kid care, things like that as well. But we’ll see that living in that behind the scenes and the resources but with the—you will be brought to that with the series of questions in this care plan. |
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Female Speaker: You want a doctor with chest X-rays, that you address that right. But the other thought I had was on language and culture. I know that the premise is that everyone is going to be able to use a computer and that's a good premise. But I really have a concern being in the south Florida area that so many of the clients and the people that might access the languages is definitely an issue. It maybe should be considered as an option in the beginning of the series. |
| 00:26 |
Female Participant: We didn’t specifically talk about it but in explaining the examples for a child profile, there are people trained in communities: multiple languages, public.. competent people who can take a parent through this system so we may.
You know, in the focus groups and we talk about training on the use of this website. Maybe we have some people throughout the state that would, I don’t know whether they'd be social service agencies or libraries who could help people through the system. We’re don't have to do it in Spanish and English, I'd imagine.
Male Speaker: And then we just caution you on focus groups tend to work very well when you’re talking about diagnosing a social phenomenon. So, how do you all think about these things. The people at Intuit, they make Quikbooks through Nextel. They call it customer-driven innovation.
And so, they only use this once they’ve actually gone out and walked around with several individuals who spend like a day with them. How do you manage your health. In our case, it was the checkbook but they're now moving the health records and making personal records. |
| 01:42 |
So this idea that you actually walk around and follow somebody and understand what they really, very specifically, do in their day. How long very specificallly it takes them to do things. So you don't end up boiling the ocean. Focus groups are not always intended or don't always work well in that it can't get the 'group think' very quickly.
Female Participant: Well, we did talk about making sure there was something to it, not just, "Oh, so what do you need," kind of discussion, being able to show it and having people hands-on going through the system, for its usability and--
[Inaudible]
Male Speaker: So, this is what we've been doing with Project Health Design is it's user-centered. So the user-centered design has some very positive aspects to it. If you don't do it right, you can also go down very quickly.
Male Participant 2: Just to throw another thing in there is, visiting people's homes is very important too. So doing a little ethnographic study where you go and you see the other tools and methods that they've come up with to manage, especially some of these chronic disease states.
Because you'll see that people come up with genius ways to avoid risks, to keep schedules, to manage medications that can be translated into some sort of digital metaphor that works as well, and it's always unexpected. But that comes from the home. You're going to a very busy home and seeing the work around that they have there. |
| 03:04 |
Female Participant: And we've done that as an organization on a company. I going to introduced myself, I'm Karen van Caulil with the Health Counsel and there are eleven health counsels in the state. And we do a lot of underground research like that. We do a lot of with stuff like HIV-AIDS, to try to understand that environment, of the day-to-day survival. So there have been studies done in Florida around groups of chronic diseases so you can certainly pick up from that and work from that as well, instead of repeating it. You'll not be able to--
Male Speaker: OK. Thank you. There you go.
[Applause] |
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