Speaker: This is part of our plan. The rest of it is on other boards over there so I can see them. The name of our group was, "Personal and Tailored Information"

Moderator: Personalized something. Personalized.

[Inaudible]

Speaker: And we had a two-tiered plan. Our long range plan was to create a personal health record that an individual could access and go on to AHCA's website and put in the information that they were willing to share. It would have printable functions. And if they were going to have a hospital procedure, they could put in whatever procedure they would have and it would shoot back information from the AHCA databases. It would also have medication information so you could your enter your medication information and you could get feedback from myfloridarx.com. 

We talked a lot about some of the barriers to implementing that. It links to one of AHCA's other projects which is the Florida Health Information Network, which is still in the works, but is trying to create a comprehensive health information infrastructure. And this would eventually link the website to that project. 

In the interim, we talked about having two phases. The first phase, you wouldn’t put your own personal information in. You would just put maybe an age range, and a little bit of information, and it would shoot back some health care information back at you. But you wouldn’t have the same problems with privacy and confidentiality, which you have with your personal health record. These are some of the tasks we talked about in terms of the long range planning, which is create standards, what kind of functions you would have and how it would link to the other databases. 

Also we talked about information and long range planning. This group would have to meet with the Florida Health Information Network group, if another one is formed and learn about some of the things that they have been working on.

Because they’ve been working on standards, and sum up how do you resolve the demographic information, how do you match names if you have the same person that has the same first and last name. You have to come out with a way to figure out how you know you’re you.  In terms of identity management, how you deal with liability, and how you keep the information private and in terms of what is the value of it like how do you fund it. Those are some of the issues we’ve discussed.

In terms of – oh, there’s my other board - we’ve talked about having the profile with an age range, a username, that would also link to an online bulletin board. So if you want to have a discussion with other people about weight management that you could post on it and be part of a community.

In terms of other applications, we’ve talked about being able to put in your email address and getting some alerts back: if you wanted healthy recipe alerts, or wellness, or emergency alerts, or even other services, if you’re in a certain age group, maybe you need apply for a Medicare ID.  That’s our purpose.

Moderator: Couple of questions. So you said there were two tiers to your…

Speaker: Yes.

Moderator: Both of the things you said are what I think of as areas of work that are pretty, well hazy, but more well defined. So you said there’s an area related to the PHRs.  There’s an area related to the FIN.

Speaker: Yes.

Moderator: Is the multiphase, are those happening in parallel tracks? So you’re not going after both of those? How is the network then?

Speaker: Our discussion was to go after both of them, but have the profile without the personal health information in phase 1 and the personal health record in phase 2.

Moderator: And the FIN stuff in phase 3?

Speaker: Phase 3.

Moderator: OK. Any questions from the group?

Female Audience 2: I’m going to ask some timeline and questions because that's what our group is responsible for. Did you guys talk about any... you got three separate phases, any timeframes wrapped around those phases?

Speaker: I think that we were thinking of the personal health record in a longer phase that we didn’t nail it down in terms of time. But we were thinking in a short term to look at a profile that didn’t link in the personal health.

Female Audience 2: That was in a year?

Speaker: Yes.

Female Audience 2: The simplistic phase 1 was within a year. We were thinking one year, two year timelines?

Moderator: So the profile without personal information attached, that’s being able to segment people by age ranges. You would like to have it done in a year so that is July 1, 2008. OK? PHR - July 1, 2009. OK, and then the Florida Health Network?

Speaker: Well, it wasn’t the Florida Health Network. But the Florida Health Network alsohad in their long range of plan, personal health record and someone from Rio were working on that. We’re linked to that project.

Speaker 2: The parallel track to that is because they’ve already done so much in identifying work and some of the issues and funding. And so instead of recreating and starting from scratch, we wanted tolink with what the FIN has done, what they're defined standardization deals or on a lot of information, some of which we didn't know.

Moderator: So assessing FIN's work today, as applied to this?

Speaker 2: Correct.

Moderator: OK. So that can be a very near-term thing, you need to get that done this year.

Speaker: Well, it was a parallel track. Yes.

Male Audience: The initial theme was, "If the site knew more about me, then it would do a better job at getting the right information at the central plan." The second one was, “Gee, if I had all those information in one place for me, then, Wow! That would be great too.” And some of us said "Well, there are all kinds of places that do that." We have FIN. Some people have said FIN can do it or AHCA could do it. But either way, you can’t go out and do them, declare your personal information unless you’re absolutely sure you got both good identity management and that you’re secure, and that stuff can’t get into.

So since that’s FIN and other people working in that, identity management is a problem for the entire state and everything it’s doing in the digital world, that’s kind of stuff that’s been going on underneath. Similarly, if I want to populate a medical record, that stuff that can be done underneath but only after I’ve identified and authorized and access to do so. We don’t know how long that will take, the state to reach those rules. It’s the national stuff actually.

But in the interim, you could imagine creating a list that you can create Uncle Ralph, or Joe, or whatever, and just put a list of things that’s necessarily your health information. Not necessarily you could play in there. If it was stolen, it wouldn’t  really be attached to you, because it’s just a list of some meds you’ve made. And you could keep that, and it would still do the same functionality. It could go later and find out for example one, I take six drugs. So I put those six drugs in and then I look at myfloridarx.com and find out the best place for all six drugs. So that was kind of the spirit of what we are saying we'll do.

Several of us were just extraordinarily, extremely concerned about authentication. We couldn’t see this going on, on its own, until those things were definite. Yyou could see a way that you can create a list of some things, and stuff and  keep it on your environment somewhere. And every time you wanted to check this thing, there’ll be a profile which you can go. It could be your uncle’s, it could be something you made up.

Female Audience 4: An interesting aside to this is that in some levels, somebody knows how to do this already. I was told at one time in my life that they thought I had MS. So I did the intelligent thing. I went home and start looking up MS. And I linked to the National Organization. I cannot get off their mailing list, email list. I still get information about MS from the entities with which I did the research, whether I continue to be interested in that subject or not.

I guess one of  my questions is, if you put enough information for the State to know what your issues are, and what your interests are for yourself, for your uncle, is there some way that you have some control over what’s sent to you so that you don’t end up with more information than you need?

Speaker: We discussed any of the applications that you wanted. Any email sent to you, you would have to sign up for that explicitly. There would be a sign off, if you were done getting the email, or to be able to unsubscribe off the list. That’s definitely included and we would take that into account in terms of designing the applications.

Moderator: All right. Anything else? That’ll do.

[Applause]