March 17, 2011

Researchers Need Subjects with Neurofibromatosis Who are Age 8-17

Does your 8-17-year-old have Neurofibromatosis?

Looking for children and adolescents age 8 to 17 with reading disabilities and with and without Neurofibromatosis Type 1

This research study seeks to learn more about how children and adolescents who struggle with reading can learn to become good readers. We are very interested in the best ways to teach people to read.

We ask children and their parent to:
1. Call to make sure this is the right study for you (15 minutes)
2. Spend one day (about five hours) for educational testing at Vanderbilt using:
• Paper and pencil tasks
• Computerized tasks
3. Based on the first-day test scores, some participants will be asked to return for:
• Two additional test sessions (each about 2.5 hours) about one week apart
• Two MRI scans of the brain (each one to 1.5 hours) about one week apart
• 15 hours of tutoring in one week, if reading weaknesses are found on testing.

We will provide:
• Academic (reading) testing on all eligible participants
• A written summary of your child’s scores, if first-day tests are completed
• $50 check mailed to your home after each part of the study is completed.

Study is conducted by the Education and Brain Science Laboratory of the Vanderbilt Special Education Department.

Study is sponsored by the National Institute of Child Health & Human Development, National Institutes of Health.

Academic skills testing with summary is provided at no cost, if first day of testing is completed. If qualified, 15 hours of tutoring. Check for $50 for each completed phase of the study.

Visit requirements
One five-hour evaluation visit, with up to eight other visits possible.

Download Brochure

Contact Information
Education and Brain Science Research Laboratory
875-5534 or

Principal Investigator: Laurie Cutting, Ph.D.
Other researchers: Sheryl Rimrodt, M.D., and Nikki Davis, Ph.D.