April 11, 2013

Neurofibromatosis Forum to be April 19-21

The 2013 Neurofibromatosis Forum will be held in downtown Nashville April 19-21, and many Vanderbilt experts are participating.

Hosted by the Children’s Tumor Foundation, the NF Forum is a weekend-long patient and family support meeting open to all people living with NF and their families. NF Forum attendees learn about the latest medical advancements, get practical advice on NF-related issues and learn about resources provided by the Children's Tumor Foundation.

A common genetic disorder impacting about one in 3,000 in the United States, NF affects how nerve cells develop, causing benign tumors, called neurofibromas, to grow on nerves. The disorder brings a range of other symptoms, including other tumors and cancers, especially brain tumors, developmental and learning disabilities, scoliosis and other skeletal problems, eye conditions, including optic nerve tumors, and hypertension.

Vanderbilt faculty participating in the forum include Tyler Reimschisel, M.D., Paul Moots, M.D., Florent Elefteriou, Ph.D., Laurie Cutting, Ph.D., and Lori Jordan, M.D, Ph.D.

On Sunday, April 21, a walk will be held in Public Square Park to raise funds for the Children’s Tumor Foundation. More info on the walk is at nfwalk.org/nashville2013.

For more information about the forum, visit ctf.org/nfforum.