Roberta Baines Wheeler Pulmonary Hypertension Awareness Day is Saturday, Nov. 7
The Roberta Baines Wheeler Pulmonary Hypertension Awareness Group, a network of pulmonary hypertension (PH) patients, caregivers, families, medical professionals and volunteers, announces plans to host its third annual RBW PH Awareness Day on Saturday, Nov. 7, at the Vanderbilt
Wellness & Recreation Center.
The full day of events, which includes complimentary health education sessions, a 5K and 6-minute walk, begins at 11 a.m. and is planned to increase awareness, empowerment and hope for the pulmonary hypertension community.
Additionally, free health screenings, including blood pressure checks, cardiology genetic counseling, vision, dental, cardiopulmonary resuscitation training, nutrition, auditory and BMI testing will be available for registered attendees and volunteers.
Organizers have also planned a face painting station for children and an on-site literacy cafe where volunteers will read books to children. All registered participants will receive a free gift bag and T-shirt. Registration fees are $25 for adults and $15 for children age 12 and under. A full 100 percent of proceeds collected through pledges and registration fees will be designated to advancing PH education.
“The Roberta Baines Wheeler Pulmonary Hypertension Awareness Day Conference was our way of contributing to the cause of expanding PH awareness initiatives by providing a free day of education, resources and hope for the community,” said Katherine Y. Brown, a medical professional and caregiver for her mother, Roberta Baines Wheeler. “The day isn't about one person, but rather a quiet, suffering community seeking a better way of life and coming together to make a difference.”
A life-threatening illness currently with no cure, pulmonary hypertension (PH) is a rare, debilitating disease in which high blood pressure in the arteries of the lungs can lead to right heart failure. According to the Pulmonary Hypertension Association most PH patients have never heard of pulmonary hypertension until they were diagnosed, and many go
months or years before meeting another patient.
"My mother was a nurse and I had been in health care for many years, however we had not heard of PH until her diagnosis," Brown said. “By increasing awareness of PH Support Groups we can change lives by providing safe spaces where patients, family members and caregivers can share their experiences, learn about PH treatments and how
others have adjusted their lifestyles around PH.
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